We were told that we would get the MRI results within 2 days. However, we waited and called, waited and called and the results just weren't ready. April immediately thought somethings was fishy, but me (not an alarmist) was never concerned that everything was okay. It was an emotion day when we found out that Avery's brain MRI showed a cyst in her pituitary region and that she had Chiari Malformation. The endinocrologist couldn't give us much information except that we needed to see a pediatric neurosurgeon. Wow...we were in shock. Here our loving, beautiful, petite little girl had a major brain issue. We had no reason to expect this....we hadn't even heard of this condition before. We were confused, scared, and worried.
A visit back to Nashville to see the neurosurgeon was mixed news. We were hoping that maybe the endinocrologist had ready the MRI wrong...that nothing was wrong with her brain or her skull. That wasn't the case. The Dr. formally diagnosed her with both a cyst and Chiari Malformation. He felt that neither were severe at the present moment but it was something that must be checked frequently. That meant more MRIs.
Our next MRI is this Saturday. We are spending two nights in Nashville and visiting the doctor on Monday. Avery doesn't know it yet, but our hotel has an indoor pool. She is going to be thrilled. However, she is not looking forward to the 4 hour MRI. She hates needles, shots, being put to sleep, and not having control. I hate it for her. She gets so upset and it's hard for April or I to bring her comfort. We are praying that she will feel peace before the procedure and her body can better handle the medicine as she wakes up.
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